Lucas Matthew passed away suddenly in his sleep on June 7th 2019. Lucas had always been a mystery baby, stumping doctors and creating negative test results left and right.
After almost two years of not knowing why Lucas was different, an answer... somewhat... finally came. BCL11B. A mutated gene that affected his brain's ability to control certain muscles, as well as many other things.
Lucas was not able to speak, walk, crawl, eat or function on his own. He needed assistance with all aspects of his daily life. This is due to BCL11B.
BCL11B is still very much an unknown mutated gene. As of today, Lucas was only 1 of approximately 15 children in the world with this known gene mutation.
Lucas was an amazing boy with a heart of gold! He lit up the room wherever he went and as long as he had his DVD player with his Muppet Babies playing, he was absolutely content!